Join our ichthyosis community for a fabulous couple of days!
Condition discussion groups for all ages and severities, focussing on managing physical and mental wellbeing
Presentations and information from medical professionals, researchers, guest speakers and samples from pharmaceutical companies
Children’s activities onsite including arts and crafts, archery, high ropes course / zipline, canoeing and orienteering
Social activities for everyone
Adults and families living with ichthyosis welcome
Event registration includes accommodation, activities, food and refreshments – €30 per member family, €10 additional adult or child